time to be serious…

July 1, 2002

I would be lying if I said everything was A-OK. My health is so-so. Niki’s health is so-so. That is a lot of our problems. We both have issues right now, that the medical field is very good with. Health matters are a familure topic for this journal. But, you have to know when to close the curtain on what you write. I’ve held off writing about this and, with Niki’s permission, I decided to talk about a condition she has been fighting with for a few years.

Niki has been diagnosed with nephrotic syndrome and is scheduled for a kidney biopsy on Wednesday. She is nervous….hell we both are. Her physicians (family and speciality) are young and really attentive. Her former physician completely missed her symptoms after two years and numerous tests. A friend introduced us to a new doctor who caught it in two visits. Both physicians seemed to be irritated that Niki’s old doctor and the specialist she orginally was sent to didn’t catch anything for two years. I’ve seen her suffer in those two years more than anyone should have to. I just want her to feel better. There will be some pain along the way, but in the end we’re hoping for everything to be better.

Niki has to be off of her feet for a week. I’m taking a few days off and possibly more if she has complications. We’re keeping our fingers crosses that those won’t pop up.

We got her diagnosis after my trip to Dallas, to be exact, about 4 hours{.liinternal} after we returned home. So we had about 2 hours sleep and then went to a Physician to find out more about her condition. She is filtering toxins from her kidneys fine, but she is also flushing out protein too . So we’ve had a diagnosis of nephrotic syndrome, but the biopsy is being used to further diagnose it. From what we’ve been researching, Nephrotic syndrome occurs in about 2 out of 10,000 people. It’s even rarer for people over the age of 18 to have this illness.

At some point you have to stop reading…everything fills your head and then you start to worry about the worst and then it consumes you. I guess in short this is my way of venting my frustrations and concerns about my wife and her illness. This is my way to verbalize our sleepless nights, the worry, & the fear.

In light of this, I’m going to take a break from the journal. I’ll give updates on her condition when we get back home. I’m not going to sit and guess when I’l return or check email. The real world is calling……